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Articles from Reaching Today's Youth |

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Reaching Today's
Youth, The Community Circle of Caring Journal, is published by the National Educational Service. |
| Complete citation for this article:
Kendziora, K. (1999). Building resilient families and communities: An
interview with Karl Dennis. Reaching Today's Youth, 3(4), 18-21. |
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Building
Resilient Families and Communities:
An Interview With Karl Dennis
Kimberly T. Kendziora
In this exclusive interview one of the pioneers of the
wraparound approach to providing youth and family services shares his insights on how this
system of unconditional care can help build resilient families and communities.
Karl Dennis, the executive director of Kaleidoscope, Inc., in Chicago, heads
the first child welfare agency in the country to provide unconditional care for children.
Mr. Dennis was one of the originators of intensive In-Home Family Preservation Services
and Therapeutic Foster Care. The Kaleidoscope pediatric AIDS foster-care program, one of
the nations first, has become a model for programs across the country. Since 1975,
Mr. Dennis has also helped to orchestrate state initiatives to return children from
out-of-state placements, providing services to thousands of children and their families.
A sought-after lecturer and consultant, Mr. Dennis has
shared his knowledge of community-based care with individuals and agencies throughout the
United States and also in China, Australia, Canada, Romania, Great Britain, and New
Zealand. He served on the Harvard University John F. Kennedy School of Government
Executive Session to develop an alternative plan for child protection. Mr. Dennis is a
member of the Friends of the Federation of Families and received their Making a Difference
Award in 1995. Mr. Dennis was also the recipient of the Marion F. Langer Award from the
American Orthopsychiatric Association for his national advocacy on behalf of children and
families. Mr. Dennis has received one of only two Lifetime Achievement in Wraparound
awards, which was given at a conference sponsored by a consortium of wraparound providers.
Mr. Dennis spoke with me about building resilient families
and resilient communities from his Chicago office on March 29, 1999.
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Tell me about your philosophy
of supporting families first. No child lives
alone. Child-centered services are not the direction we need to be heading in. We need to
support the entire family. For example, the traditional juvenile justice model removes
children from their homes and families, "treats" them, and then returns them to
an environment unchanged since they left. Failure to take a childs context into
account leads to high recidivism rates. On the other hand, when the family as well as the
targeted children receive services, the whole family can really get it together, and
theres a much better opportunity for success.
Are you opposed to out-of-family services?
On some occasions, children do need to be placed outside
the home for some period of time. But when it is suggested that families in trouble need
to have a child placed in a residential setting for three or four years, we need to be
open to the possibility that intensive, in-home services to that family for that same
period of time might achieve the same outcome. Recommendations for short-term residential
care (only five or six months) almost always suggest that in-home services might do the
job just as well. In either case, in-home services would not only be more cost-effective,
but also would keep the family together. It is my belief that when children do need to be
placed, they need to be placed in the least restrictive environment possible.
Tell me about your approach to working with families.
We see family strengths. Families can be strong not only
for themselves, but also for each other. The Federation of Families exemplifies this.
Parents can help other parents, and we need to pay attention to this valuable resource
within communities. Some states and communities have made great use of parent advocates in
the process of treating troubled childrenCalifornia, New Mexico, and an Annie E.
Casey site in Houston, called The Friend of the Family Program [see box].
Helping others isnt just good for the ones who are
helped; its good for the helpers, too. One thing we used to learn about peer
counseling is that often, peer counselors learn as much if not more from the people
theyre providing services to.
| Mr. Dennis told us about . . . The Friend of the Family Program
People in Partnership, Inc.
The Organization of the Casey Initiative
3000 Trulley
Houston, TX 77004
Phone: (713) 659-8630
Fax: (713) 659-2821
Contact: Nelda C. Lewis
One way to build resilient communities is to channel
the strengths found in families toward other families needing that help. The Friend of the
Family Capacity Building Education Program does just that. Families who were a part of
planning the Annie E. Casey Mental Health Initiative initiated the concept of families
helping families in their community. Their idea was to provide formal training and
certification of family members in broad areas of human service work. Training topics
include first aid, behavior management, conflict resolution, crisis intervention, respite
care, and advocacy. The complete curriculum consists of 60 hours of course work, an
internship, and graduation activities. Payment for the course is either $250 or 40 hours
of volunteer service. Courses are held on Saturdays, and child care is provided. The value
system behind the curriculum reflects the positive values of working together, respecting
each other, and promoting and celebrating collective history. Graduates of the program are
certified as a "friend of the family," and their community services can be
reimbursed by managed care.
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Youre an expert on community-based
care. How do you approach working with communities?
In community systems, we focus on building a process of
neighbor helping neighbor.
One Ohio county discovered that there was no respite care
available for those needing it. A community team made up of representatives from the
business, religious, and human service sectors recruited volunteers. One private agency
trained the volunteers, and another took on the role of matching volunteers to families.
The religious community has been very helpful in the
process of serving families. One church I know of sponsored construction work in the
basement of a members home in order to allow a relative to move in to help out with
the familys challenges.
How does community mobilization get started?
Dr. Ira Lourie has written beautifully about the many local
systems involved with providing care for children. I wont try to repeat his message
here. [See reference below.]
What Ive seen is that communities come together
around some target issue. This issue is sometimes positive and sometimes negative. For
instance, a community may come together around applying for a grant. Usually, a few people
pull it all together. These people are often not the people at the top of the power
structure, but are further down the line. Their passion persuades those in charge to
support them.
We miss the boat by thinking that mental health
professionals are jacks of all trades. We need community developers to help us meet the
needs of our communitys children.
What obstacles face those who are trying to pull
resilient communities together?
The systems themselvessuch as the mental health
service system, the child welfare system, the special education system, and the juvenile
justice systemcan often be barriers to community mobilization. When you start
talking about pulling communities together, then some folks have to give up power. They
also have to give up money. Currently, funding is very categorical. To effectively serve
our childrens needs, funding for services needs to be more flexible and must be able
to be used across service systems.
Another problem in terms of community services is that
there are not many universities training folks in family preservation, therapeutic foster
care, or independent living services. Many new Ph.D.s often know very little about family
preservation, which should be the backbone of all services.
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You are one of the pioneers of
the wraparound process of engaging multiple service systems within a community to meet the
needs of children and families. Tell me about wraparound as you see it. I see several principals as crucial for wraparound. Wraparound is .
. .
Community-driven. Collaboration across systems is
necessary for truly effective service. No one system has all the answers.
Family-focused. We design services to serve the
entire family. For example, a child from a poor family may be stealing to help support his
family. If hes caught and incarcerated, that does nothing to change the
circumstances that led up to his stealing in the first place. A family-focused approach
might work to help the familys caregiver find a job, which might eliminate the need
for the youth to steal. Another thing to note is that when a whole family is served
following one childs crisis, other children in that family can also benefit.
| Mr. Dennis told us about . . . The Safety Surveillance Program
Georgia Parent Support Network, Inc.
620 Peachtree St., Suite 300E
Atlanta, GA 30308
Phone: (404) 875-6801
Fax: (404) 875-6755
Contact: Sue Smith, President and CEO
The Georgia Parent Support Network was founded in 1989 by
30 parents and professionals who shared a vision of family involvement in issues that
affect children with mental health disabilities. The Network has grown to over 2,500
members, who now sit on almost every policymaking board where decisions affecting children
and youth with mental disabilities are made. One program the Network runs, the Safety
Surveillance program, provides community-based services to juvenile sex offenders.
Community volunteers who are invested in the targeted childs life provide oversight,
monitoring, and implementation of treatment protocols. A case manager trains volunteers
and coordinates their activities. Services are coordinated through carefully planned
collaboration: Agencies across many disciplinary areas work from one individual service
plan, and only one case manager works with each family. Every service plan is highly
individualized to serve the needs of each unique youth and family. As the family and
community gradually take over the care of each child, professional services are faded out.
During the four years that the Safety Surveillance program has been in place, none of the
youths have reoffended. [For more information, see article in Reaching Todays
Youth, Volume 3, Issue 3.] |
Creative. Heres an example. One
state asked me to help put a plan together for a particularly hard-to-serve youth. There
was an autistic child who was institutionalized at the cost of about $100,000 per year.
This child spent weekends with his father, who interacted wonderfully with him. I asked
why the father couldnt take care of the child all the time, and the response was
that the father had to work. "How much does the father earn?" The answer was
$40,000. My suggestion was to pay the father $40,000 per year to stay home and take care
of his son. Even with state money spent on various outpatient treatments and services, the
state would still save a substantial amount of money.
Unconditional. There must be no artificial time
frames on how long were going to serve a family. We care for our own children for
life, and we need to regard children in the community the same way.
Strengths-based. It is natural to approach people
based on positives. If, when I first met my wife, she had said, "Youve got big
ears, funny eyes, and you walk a little strange," we never would have gotten
together. Thats no way to build a relationship with another human being. To get
people to respond well to you, focus on the positives, on the strengths. The
deficit-focused approach that has dominated mental health may not be the most successful
way to see someone.
Individualized. I have never met two people whose
minds work just the same. Think about your own family, especially if you have more than
one child. Can you reasonably care for these different children in exactly the same way?
Can you always discipline them in exactly the same way?
Culturally competent. We have to look at people as
different. We have to find out what each persons approaches and values are. Most
people think of ethnic differences here, but regional differences, or gender differences,
are just as legitimate. Imagine an orthodox Jewish family who approached a service agency
for help with family problems. Imagine that this agency insisted on the family coming in
on a Saturday, their Sabbath. How would the family feel toward that agency?
Cost-effective. If it is not cost-effective, then
theres a problem. Were not using bricks and mortar in our work. Human services
dont have large materials-related costs. Never pay for what you can get for free.
This is not a motto of "cheapness," but rather one that reflects an emphasis on
sustainability of care. I tell my staff, "It is your responsibility to work your way
out of a job."
Outcome-driven. Accountability is crucial. We need
to ask ourselves: Is what were doing making any sense? Is it working? You must
always revisit your goals to make sure that what youre trying to change is having an
effect. If youre working with a family with a child who has been truant from school
for more than 30 days, and you decide you need to work on helping the father get a job,
does that help the child stay in school?
Wraparound is an exciting approach to service. For
wraparound to continue to grow, we need to expand the circle of advocates for the process.
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What trends are you noticing
in service systems? Things have changed in the
world of services. On the up side, in the 70s, folks thought that the staff at
Kaleidoscope was crazy for "doing whatever it takes." Now, according to Barbara
Burns and Sybil Goldman (1999), over 100,000 children and youth have been served using a
wraparound process.
On the down side, there have been some policy changes that
have affected services for the worse. When government changes, services change, and it can
be a struggle to keep up. More than ever, Im irritated by some of the changes
Ive seen.
One current case involves a woman who has been both a
client and a trainer at Kaleidoscope. She is on public aid, and although she is on a heart
transplant waiting list, she has been ordered to find a job. One of her sons has recently
interviewed for a full college scholarship in architecture. Another son has seizure
disorder and has been receiving SSI benefits. She is now fighting to have those benefits
continued.
Another trend has been toward shorter-term service. At
Kaleidoscope, the family served the longest was in care for about five years. The
caregiver had some mental health problems and seven children. Kaleidoscope provided care
to each of the children. Had Kaleidoscope not been there, the children would have been
placed and almost certainly separated. The move toward shorter-term services represents a
lack of a holistic approach.
Still another trend is that systems with paraprofessional
providers are moving back toward an emphasis on more services provided by professionals.
This process is influenced by Medicaid and other reimbursement policies. However,
sometimes the best people do not have the paper qualifications to work with children. For
example, a juvenile court judge I know who is an exceptional person could not be hired to
work as a supervisor at Kaleidoscope because the judge did not have at least a
masters degree in social work.
With respect to permanency planning, Ive been getting
many calls from people around the country who are really concerned that their parental
rights will be terminated. This is based on some federal legislation. There is a
suggestion that in some states, as many as 13,000 parents will have their rights
terminated. There are certainly humane issues involved, but also, I cant see how the
human services system can absorb this influx of cases. Other legislation has now passed
such that cultural issues can no longer be considered in adoption cases. I would prefer to
place children within their own cultural and ethnic backgrounds and, when this is not
possible, train the adopting families in that cultural background. However, adoption
services in most states are "front-end"; that is, once the adoption is
finalized, it is difficult for families to then receive services.
| Mr. Dennis told us about . . . Wraparound Milwaukee
Child, Adolescent Treatment Center
Milwaukee County Mental Health Complex
9501 Watertown Plank Road
Milwaukee, WI 53226
Phone: (414) 257-7639
Fax: (414) 257-7575
Contact: Bruce Kamradt, Project Director
The underlying philosophy of wraparound involves
empowerment of families and communities, not entitlement. When community agencies can come
together to effectively help those in need in a way that builds upon natural supports,
they build a true system of resilience. Wraparound Milwaukee is an intervention program
that works with children identified as having Serious Emotional Disturbance (SED) or are
at immediate risk of psychiatric hospitalization or residential placement. The program
uses a managed care approach, building service delivery upon a case management system. A
mobile crisis response team deals with family needs and helps avoid unnecessary
psychiatric hospital admissions. The services begin with a strengths-based inventory and
needs assessment. The program creates a child/family team, and then works out a highly
individualized service plan. Over 60 agencies, organizations, and supports representing a
comprehensive array of services function as the Provider Network for Wraparound Milwaukee
and collaborate to provide a seamless system of care. Funding from Medicaid, child
welfare, and juvenile justice sources is combined into a flexible fund that supports
individualized plans. Wraparound Milwaukee has reduced the use of restrictive placements
and has reduced costs. More important, children show significant improvements in their
functioning. |
Any final comments?
About our approach to our work: were no different
from the people were serving. The only difference between them and us is luck. When
possible, we like to include our own families in recreational pursuits with the folks to
whom were providing care. It is important for client families to see providers as
involvedwith no big desk in between them. At Kaleidoscope, we see ourselves as
friends helping friends.
Kimberly T. Kendziora is a research analyst at the
American Institutes for Research, where she works for the Center for Effective
Collaboration and Practice. She focuses her work on issues of prevention of mental health
problems in children. She can be reached at the American Institutes for Research, Pelavin
Research Center, 1000 Thomas Jefferson Street, N.W., Suite 400, Washington, DC 20007,
telephone (202) 944-5391, fax (202) 944-5454, e-mail kkendziora@dc.air.org.
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REFERENCES Burns, B. J., & Goldman, S. K. (Eds.) (1999). Promising
practices in wraparound for children with serious emotional disturbance and their
families. Systems of care: Promising practices in childrens mental health, 1998
series, Volume IV. Washington, DC: Center for Effective Collaboration and Practice,
American Institutes for Research.
Lourie, I. S., & Katz-Leavy, J. (1991). New directions
for mental health services for families and children. Families in Society, 72,
277285. |
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